Thursday, October 30, 2008

~ Josiah's First Haircut ~

My sister, Lisa, gave our girls their first haircuts when they each were around 2yrs old. Josiah turned 2yrs old on October 16th and had finally had enough hair to need a haircut. His big sisters decided his "baby mullet" needed to go! I kept teasing the girls that we were keeping the "mullet" style so I could surprise them when I finally had it cut.

Josiah was a bit apprehensive about the whole process so we distracted him with Red Vine candy while he received his first hair cut by Aunt Lisa at Grandma B's house.

Patiently (?!?!?) waiting....
And the final results...
(The flash on my camera was too bright, though)


It's amazing how the first hair cut can make the little ones go from having that "baby look" to looking like a little boy, instantly!

~Today's Twitter~

Tracey's Tweets for Today
  • 02:16 Had a great afternoon Wednesday @ the Pumpkin Fest @ Rock Creek with everyone! Again, another sleepless night tonight. ~*~Tracey~*~ #
  • 02:28 Looking forward to carving pumpkins with my kiddos Thursday evening! I'm so blessed by ALL of my family. ~*~Tracey~*~ #
  • 02:35 Hmm....this Twitter blog update feature via text is quite handy! I may need to add unlimited texts to my cell phone plan. ~*~Tracey~*~ #
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Wednesday, October 29, 2008

~Today's Twitter~

Tracey's Tweets for Today
  • 23:11 Trying to figure this twitter thing out.... #
  • 09:36 Just checking out Twitter postings to my blog...I'm a newbie! ~*~Tracey~*~ #
  • 09:39 Will be visiting Mom today, then on to a pumpkin festival! ~*~Tracey~*~ #
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Sunday, October 26, 2008

In Memory of my Dad

Dad, doing what he loved: fishing!
>Josiah< >Papa<
>Dad< >Tracey<



Sunday, October 19, 2008

In Honor of My Father

My Dad and I

My heart breaks as I post this tribute, written together by my siblings, mother and I for his funeral, in honor of my Amazing, Wonderful Father:

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~~In Loving Memory of Joseph Richard Balsiger~~

Husband, father, grandfather, brother, uncle, cousin, friend, HERO - all titles we’ve used to describe one amazing man. Joseph Richard Balsiger left this Earth to be with Jesus on Sunday, October 19th. 2008.

Joe was born to Henry Lee and Pauline (Hearn) Balsiger in Hood River, Oregon on November 8th, 1943. The youngest of Henry and Pauline’s children, Joe was welcomed into his family by siblings Ray, Phillis and Henry. Being raised in White Salmon, Joe graduated from Columbia High School in 1963. He joined the United States Navy, serving from 1965 to 1967, on the USS Kitty Hawk with his brother, Henry, during the Vietnam War. After leaving the military, he worked at SDS Lumber Company and then on to the City of White Salmon, where he retired from the Public Works Department after 30 years of service.

Joe was a dedicated, loving husband to Mariland and an incredible father to Randy and his wife, Gladys; Tracey and her husband, Steve; Lisa and her husband, Jorge; and Tyler and his wife, Kristy.

Joe lived his life an honest, hardworking, patient man who made certain his family was always provided for, no matter what. There was never a limit to the amount of love and compassion he bestowed on his family and friends.

Joe and Mariland were blessed with the “Perfect Dozen”. Twelve grandchildren! Six boys and six girls: Michyle, Mariah, Giles, Ian, McKenna, Miranda, Savannah, Sydney, Dade, Sophia, Antonio and Josiah. Papa was so very loved by his grandchildren. Joe’s trademark sense of humor included him always trying to be the first to say the phrase, “Glad you got to see me” before his children and grandchildren could when they were saying goodbye. It became a game to be the first to say it!

Joe was an avid outdoorsman who loved hunting, fishing, camping, picking mushrooms and berries and doing anything in the outdoors with his family. Deer and elk hunting was a favorite pastime of his. Over the years, Joe and his sons had adopted the tradition of the boys taking care of the animals he had taken...due to the fact that after he shot the animal he would get so excited he couldn’t stop talking, he would relive the whole hunt in every detail and he would be shaking so badly that he couldn’t even light a cigarette. They would just ask him for his knife and dress the animal out for him, they were honestly afraid he might cut a finger or two off.

Joe was very proud to have got a three point buck the Tuesday before his surgery!

Joe and Mariland enjoyed spending as much time as possible at their place on the coast in Grayland, where everyone was always invited. At the coast, Joe enjoyed fishing, crabbing off the docks, and searching for moonstones in the sand. But most of all spending time with his family and friends. Joe & Mariland shocked many of their family when they showed their rebellious side by coming home with new tattoos they got at the coast one year.

Although he may have rolled his eyes when Mom suggested shopping, you would never see Mom at a yard sale or Walmart without Dad there with her.

We know if Dad were here right now he would be passing out his cure-all hugs to each one of us. If you were ever fortunate enough to receive one of his famous hugs, you know why it is one of the many things we are missing so much right now about him.

Joe was a positive influence on so many people’s lives, he was always there for us and he will be deeply missed by all who knew and loved him.

Tuesday, October 14, 2008

Game Time!



Soccer season is in full-swing! McKenna is in the red uniform and LOVES playing, although she can't wait for basketball season to begin!


Sunday, October 12, 2008

Mariah's incision today ~

Mariah is healing so incredibly well! Her incision continues to look better each day. She has asked me to take daily photos and post them here so she can see the healing progress AND because she can't see it very well due to where it is located (the photo below is posted at her request and with her permission). She is so pleased with her choice of having the I*C*D placed under the muscle because of how well the cosmetic results are. Under the muscle makes for a more uncomfortable recovery but has less visibility and more protection (particularly while playing sports).
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Mariah won't be able to play sports such as basketball or soccer that could result in impact in the area of her device. Her E*P* said she can continue playing softball (something she's played since first grade). However, after we witnessed a first baseman being hit in the upper chest area with a softball last season, we are most likely going to find a chest protector for her prior to this upcoming season.
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The photo below, taken this evening, shows her incision ~ so if you are bothered by those types of images you might want to simply skip on to the next post =)
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Sorry for the crazy spacing with the paragraphs, etc...blogger seems to be messing with me tonight!!
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My family

Miranda and JosiahDaddy (Steve) and Josiah
Josiah, Mariah and Mariah's "Love" Bear
McKenna enjoying reading...she loves to read but it comes in second to her enjoyment of playing sports...soccer, basketball and softball!


Update on possible blog changes

For the time being, I've decided to make no major changes to the accessibility of our blog. Mariah has requested I leave it as is and not allow one person's concerns change the way we've managed this site since we created it nearly three years ago (although we do completely appreciate this person's well-intentioned concern). If ever Mariah (or any of our other children) wants information or photos relating to her/them removed, I won't hesitate to delete that information immediately.

I am working to make this site less visible/searchable on Google searches and possibly Google Alerts.

I have, at least temporarily, selected "NO" to this option provided by blogger:
A Listed blog may be linked to from Blogger.com, such as the Blogger home page, Blogger Play, and Next Blog. If you select "No" your blog will not appear in these places, but it will still be available on the Internet. This blog will still be displayed on your profile unless you hide it.
And "NO" to this option:
If you select "Yes" we will include your blog in Google Blog Search and ping Weblogs.com. If you select "No", everyone can still view your blog but search engines will be instructed not to crawl it.
SO, if you happen to see words that look broken up like this: lo.ng Q*T syn*drome or ele.ct.roph.ysiol.ogi.st or something similar it is to prevent these terms from triggering Google Alerts for those terms. I still haven't decided if that is completely necessary as we would like to provide factual information regarding ICDs, long QT syndrome, etc, as well as our experiences... Although, in reality, if someone has their Google Alerts set to inform him or her of blogs posting these terms it would seem he or she would be seeking this information. That said, visiting this blog or any other website is completely optional and if there is information that offends someone he or she simply doesn't have to visit those sites or can exit out of the site immediately.

Lately the majority of my posts have been about Mariah and her condition and surgery as that has been a major focus in our lives recently; however, the original intent of our blog is to provide information about our family to family and friends. We also want to chronicle our lives with this journal.

We do thank each one of you for visiting our little corner of the world!

Isn't he goofy?




Josiah, being goofy by putting a clip on his nose! He cracks us up so often!! Silly, silly boy!

Building up her strength!

Mariah is working on building up her strength! This morning she and I ventured to Wal.Mart for just a couple items and a treat for her. She then decided a mocha sounded yummy so we headed to St.ar.bu.cks for her favorite coffee drink.

She's also been taking walks outside during the day while it isn't too cold. Yesterday we had a heavy frost and some ice on our back deck! I guess it is that time of year, isn't it?

~Our Sleeping Prince~


I love his LONG eyelashes!!!

Mariah and her "friend" =)


Possible temporary blog changes

If, in the near future, my blog states you must be an "invited reader" or something similar to that, it is because I've changed it due to certain issues...at least temporarily. If this happens, simply email me at stroberts@gorge.net and I will give you (our family and friends) the information to access the blog. I'm not convinced this measure is necessary but am considering it for various reasons. For anyone who is concerned about information I've posted on here regarding Mariah, her procedure, her condition, etc, please know that nothing concerning her has been posted (including photos) without her specific permission.

Saturday, October 11, 2008

10/11/08 photos

The lap quilt and teddy bear given to Mariah by the Ronald McDonald House.


A copy of the xray showing the leads. The ICD is not shown in this image:


A photo taken today of Mariah's beautifully healing incision!!!

ICD info

The Medtronic representative, Helios, gave us a lot of information regarding the restrictions that go along with having an ICD. This will be a lengthy post!

Some interesting and important information:
~Mariah's device is an ICD (implantable cardioverter defibrillator) as well as a pacemaker. If her heart rate decreases to 40bpm or lower it will pace her heart back up. If it reaches 220bpm it will attempt to lower her heart rate once. If that attempt is unsuccessful, it will deliver a shock. If her heart rate reaches 250bpm it will automatically deliver a shock without attempting to pace her heart rate lower.

~Mariah cannot EVER have an MRI. The magnetic component of the MRI will destroy her ICD and will cause the leads that go into her heart to act similar to a microwave and start "cooking her heart muscle". Obviously NOT a good thing!! We will be getting a medical alert bracelet ASAP.

~I think I covered this in a previous post but I'll list them again: she shouldn't use a chainsaw; if she uses a shotgun, she needs to brace it against her right shoulder; she shouldn't be tased or have a stun gun used on her; if she becomes a mechanic, she shouldn't work on a vehicle's alternator; she's fine to go through the magnetic inventory control areas of retail stores but shouldn't lean on the alarm systems (not like she ever considered doing that in the first place, but it's nice to know about); she shouldn't place magnets over her device...and I'm sure there is more I can't remember right now.

~She can use a cell phone, but can only be placed at her right ear. If she uses a hands-free cell phone ear piece it must not be a "blue-tooth" device. She can use blue tooth devices as long as they are used away from her device, such as in her lap.

~Mariah is NOT to wear the magnetic healing bracelets, magnetic healing pads and cannot use a magnetic bed mattress.

~If Mariah receives an instance of one shock only, we are to call her EP's office during normal business hours. If her ICD delivers multiple shocks she is to go straight to the ER. At the ER they will determine if the shocks are/were appropriate. If she has a "normal sinus rhythm" there is therapy the ER can deliver to bring Mariah out of the "shocking storm".

~When Mariah goes through airport security, she will set off the alarms. She has been given a temporary ID card explaining what device, model number, manufacturer, etc, until she receives her permanent card in the mail.

~The Medtronic representative has offered to provide loaner educational materials and demo models of ICDs, a heart model, etc, if Mariah ever decides to do a research project for school. Since she has completed her biology courses we've discussed talking with her teachers about extra credits (or something similar) for her to provide a presentation of arrythmias, Long QT Syndrome and ICDs.

~Mariah's device has been equipped & programmed with the "HBO option" according to Helios, the Medtronic representative. Mariah was sleeping during the time he was checking her device so he told me to give her the following information:

She has the "HBO Option" in her device. This means if she goes outside at exactly 5:00pm on any given day (not 4:55pm, not 6:30pm, but precisely 5pm) and stands in the middle of our yard (rain, snow, sleet or shine), holds both arms straight above her head (after her healing is completed) and turns counter-clockwise FIVE times, she might be able to pick up the HBO channel!!! She found this quite funny! Now, let's see if she tries it out....hee, hee!
I'm sure I've left out some of the information about her ICD, but this is a general over-view of what we were told.

Monitoring an ICD

In addition to more frequent visits at her EP's office, Mariah will have regularly scheduled ICD checks via this CareLink box. Also, any time she isn't sure if something has occurred with her device, she can use this machine to transmit over a telephone land line the data from her device to the Medtronic company. She should receive this equipment within the next four weeks.

10/06/08 photos

Mariah was discharged from the hospital Thursday AM. Besides being in pain and weak (to be expected) she is doing well. She continues to amaze us with her strength! Below are some photos of her incision. All photos of Mariah and her incision are posted only with her approval and permission.


The outer layer of her incision is closed with DermaBond http://www.dermabond.com/
(an adhesive which seems similar to superglue). Because of the adhesive/sealing properties of this substance, she doesn't need dressing over her incision. She did have a nice, snug pressure dressing for about 24hrs due to the swelling that started in the recovery room. The DermaBond will gradually peel away from her skin and we will simply need to trim the portions of the adhesive peeling away with scissors. She does have sutures below the surface of her skin which are absorbable.




This photo shows Mariah giving us the "thumbs up" sign in the recovery room shortly before the swelling started.
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The picture below shows her incision before the swelling started and the pressure dressing was applied:

Tuesday, October 07, 2008

Tuesday, October 7, 2008

This will be a lengthy post!!

The representative, Helios, from Medtronix (the company who manufacturers the ICD) came in to check and verify the settings of her device around 9am this morning. It's too late for me to think clearly so I will try to post more information sometime in the next few days when I can access the notes I took while he was talking and can formulate my thoughts better!

11:30pm ~ with all the meds the RN's administered, Mariah is now sleeping well and hasn't woke up having difficulty catching her breath like had been the case all throughout the day today. I hope and pray she sleeps either until the nurse needs to take her vital signs or she needs her bloodwork at 5am Wednesday morning. Bless her heart.

9:30pm ~ Mariah has had difficulty catching her breath and feeling like she can't get enough oxygen despite her O2 saturation being in the upper 90%. This has been happening all evening. Now, she is feeling pressure around her chest and says she feels like there is something very heavy sitting on her chest. Her lungs sound clear but she cannot get relief from the pressure, chest pain and shortness of breath. Her terrific RN started oxygen through a nasal cannula so Mariah might not feel so poorly with her breathing. The O2 did not help and the cardiologist on-call for the office was called. He (Dr. Kaiser) ordered increased litres of oxygen, Ativan to help calm her breathing and a much larger dose of morphine than she had been getting. Shortly after the increase in O2, Mariah's oxygen decreased to the lower 70%s which is entirely too low and her heart rate slowed to 43bpm. The RN's (she had two at her bedside by this time) quickly had her start using her incentive spirometer again to help expand her lungs more effectively. Thankfully, her oxygen saturation started to increase.

6:00pm ~ She's on the move, again. Ugh! Mariah was being "evicted" from the hospital room she was moved to last night. The room was needed for two 6yr old boys and the nurses were moving her back to the room she was in originally....the room with the enthusiastic Yahtzee players. Mariah expressed her concern to her nurses (through tear filled eyes) of being back in the room with all the insensitivity and loudness of her former roommate. Her nurse said she would remind Mariah's roommate of the necessity of being sensitive and quiet and if things got out of hand we could either ask the neighbors to stop or simply talk to her nurse. Once we arrived in the room, she was blessed, temporarily, with her teen roommate and the mom being very respectful. God is good.

5:30pm ~ Mariah is being her typical nurturing self and INSISTED I go downstairs to get a bit of food to bring back to her room for me to eat. Goofy girl keeps asking me, "Mom, when was the last time you ate? You HAVE to make sure you are eating!!!" This was the first time she had been left alone since her surgery and wouldn't you know, it is the time her cardiologist EP comes in to examine her. Yesterday, right after her surgery, he said he thought she would head home either Tuesday afternoon/evening or first thing Wednesday morning. Due to several issues, he said he does NOT want her discharged tomorrow and will re-evaluate her on Thursday.

4:30pm ~ Another walk! This time, she was adventurous and made a big loop outside the pediatric area. She placed her right arm around my shoulder for support and to steady her and Bobby was on her left side in the event of her needing additional support or becoming too dizzy and requiring quick assistance to sit on the floor to avoid falling. She did very well and only needed her arm around my shoulder to brace herself and for support.

1:00pm ~ Mariah was blessed with some nice, sound sleep for a couple of hours this afternoon. (I took advantage of that opportunity and slept a bit, also).

9:30am ~ per Mariah's EP's orders, we went for a walk partially through the pediatric unit. She did very well and was thankful for the pain medication she received when she returned to her room. Of course, she was weak and dizzy (not eating since 11:30pm Sunday night will do that to a person in addition to the meds she's taking). I am SO proud of how strong and brave she is!!

8:00am ~ Mariah's cardiologist evaluated the incision and entire area and was quite pleased with how it appeared! Her chest xrays were, in his words, "perfect".

8:00am ~ The pressure dressing was removed and showed to be very effective at reducing some of the swelling in the area. Her incision is much more flat and the entire area doesn't seem nearly as swollen as before.


7:45am ~ the EKG Mariah just had went well other than the pain involved in removing her arm from the immobilizer to place the stickers for the leads. She's doing well.


7:15am ~ She's back in her hospital room (and is still the only patient occupying this room, thankfully). Her nurse gave her pain meds right after she arrived back into her bed since she was in so much pain from the transport and slight movement of her left arm after the immobilizer was removed for the xray.


6:30am ~ Mariah had several chest xrays to check the placement of her ICD and leads. Her shoulder immobilizer needed to be removed for this. Getting into the different positions required for the xray was very painful for Mariah, despite having IV morphine administered prior to the transport to radiology. BUT, she handled it like a champ!!

10:30am ~ October 7, 2008

This image is almost identical to the immobilizer Mariah has to wear for at least the next two weeks. It is very snug and helps to keep her left arm from moving to decrease any pain as well as helping avoid the leads going into her atrium and ventricle from becoming dislodged.

Monday, October 06, 2008

6:45pm ~ October 6, 2008

An empty hospital room opened up and they've moved Mariah to her own room. Her roommate and her family became increasingly loud and insensitive to the fact Mariah just had surgery and was experiencing intense pain. This roommate (the 16yr old, crazy Yahtzee girl) has been in the hospital for almost two weeks due to Chron's disease, has not had surgery, was feeling great and says she is ready and wants to go home (she may be discharged on Tuesday). They didn't seem to have a lot of compassion for a patient just out of surgery. Mariah was getting very frustrated and the "straw that broke the camel's back" was when the roommate and her mom entered into a very lively game of Yahtzee at a time Mariah was in tears from pain. The noise from the shaking of the dice in the Yahtzee cup and tossing them onto their bedside table was making Mariah so anxious and tensed up it was increasing her pain. We tried a passive-aggressive approach by me loudly saying, "oh, Mariah, sweetie, you are JUST out of surgery, in a lot of pain and in need of peace and quiet. Please close your eyes and try to get some sleep. We will sit here next to you and not talk so you can rest." That did NOT work. The roommate and her mom enthusiastically continued enjoying their game. Now, we are NOT Yahtzee-haters as long as it is not happening in a room with a post-op patient experiencing a lot of pain...especially if that patient is my daughter!

Mariah asked me to speak with her nurse to have her request the game either be moved to the family lounge or ceased. Always being the sweet person she is, Mariah wanted to make sure the nurse didn't tell the roommate she was the one making the request. Thankfully, the nurse let us know there was an empty room available Mariah could be moved to (no guarantee how long she will be the only patient in this room, but for now it's all good).

Typically, Mariah has a very high tolerance to pain; however, since she is experiencing bleeding or swelling under the skin and muscle greater than they expected, AND has a very tight pressure dressing over the area, her pain is much more intense than it normally would have been. That said, she is such an incredibly brave, strong girl and I am SO very proud of her!!

5:51pm ~ October 6, 2008

Mariah's pain is under better control. It took a while and several changes but things are looking better for her. When her pain starts creeping up it happens quite quickly so it is nice for her to have morphine to reduce the pain within minutes rather than waiting for any oral pain medication to take effect. She is taking oral meds for pain but has IV morphine ordered once an hour as needed to take when the oral meds aren't helping. My silly sweetie keeps waking up to make sure she isn't missing any visitors!

2:30pm ~ October 6, 2008

Mariah is now settled into her room. The swelling seems to be decreasing, however she is now having pain and pressure in her neck and left shoulder. The nurses are applying ice packs to her shoulder and neck. Just prior to the pain & pressure, she reached a point where pain was out of control. Her EP and nurses have been working at getting it under control.

Naturally, she is quite drowsy...partially from the anesthesia but also in part due to the Benadryl she is having administered to counteract the itching from the Morphine. She REALLY needs to sleep but doesn't want to miss a single visitor. GOOFY GIRL!!!!!

More later...

12:55pm ~ October 6, 2008

Mariah's incision and surrounding area was looking incredibly well when we first entered the recovery room. Around 12:55pm the incision, area over the device and into her armpit started to swell. The EP came shortly before 1:30pm in to check what was happening and decided there was some increased bleeding under the skin and ordered compression dressing over the area....NOT COMFORTABLE to have placed, to say the least! The compression dressing will stay in place until at least tomorrow morning.

More later...

12:15pm ~ October 6, 2008

Around 12:45pm we were able to go into the recovery room and stay with Mariah until she returned to her room. The recovery nurses said she is doing remarkably well. Steve and I humored her and kept her company while she was waiting. She is such a sweetie! Her left arm is in an immobilizer which will be the "sling" she will wear for two weeks. Her immobilizer wraps around her abdomen and secures her arm to it.

More later...

11:45am ~ October 6, 2008

Just waiting for the recovery room nurses to allow us to go in and see Mariah....

Currently she still has a breathing tube in place since she has not woke up yet. Once she is conscious and her breathing tube has been removed we will be able to go in and stay with her until she is transported back to her room.

Waiting...

11:20am ~ October 6, 2008

Mariah's EP just came in to report she's out of surgery and it all went very well. She is in the recovery room at this time. Her EP was successful in placing the ICD under her pectoral muscle. He was quite pleased with the aesthetics of her device placement. He said it was barely noticeable when she was laying flat, except for a little more fullness. Even the cardiac nurse case manager saw it in the OR and thought it looked great. Over time, even the fullness should decrease slightly since inevitably there is swelling. Her EP gave a paper copy of the xray showing the leads to Mariah to help satisfy her curiosity. He also gave us a demo ICD to keep. Mariah's device is about 10% smaller than the one he gave us but it at least gives her an idea of her ICD looks like.

She should be in the recovery room for about an hour. We will be heading down to the waiting room outside recovery and as soon as she is awake they will let Steve and I go in to see her.

Just to give an idea of what the device Mariah has had implanted today, the photos below show the ICD demo model next to a an ink pen.


10:30am ~ October 6, 2008

Tammy, the cardiac nurse manager provided us another update. She has been great to keep us posted on what is happening. Our sweetheart's surgery is progressing very well still. The device has been implanted; however, the cardiac nurse manager still wasn't sure if it was placed under or over the muscle yet. We will find out before too long, anyway, so it really isn't necessary for us to know those details at this time. Right now the EP is testing the device. This means he is putting her heart into a fatal arrhythmia to make sure the ICD is effective in shocking her heart back into a normal rhythm and the energy to produce the shock is adequate.

After the EP (pediatric electrophysiology cardiologist) comes into her room to give us a report on her surgery, we will be able to go down in a waiting room near the recovery room and most likely have the opportunity to sit with her part of the time she's in recovery.

The EP said she should probably avoid pursuing a career in arc-welding and if she decides to become a mechanic she won't be able to work on the alternator in the cars. Our booklet says she should NOT operate a chainsaw and should NEVER have a stun-gun or a taser gun used on her. There goes her career as a criminal! No tasers...bummer! Guess she will need to choose another career path (hee, hee!!). Joking aside, she can't ever have an MRI. An MRI will destroy her device and will cause the leads in her heart to act similiar to a microwave and start "cooking" her heart tissues. We will be ordering a medical alert bracelet in order to alert any medical professionals to her Long QT Syndrome and ICD in the case of her being unconscious in the ER, etc. Oh, she will also trigger the security/metal detector systems in airports. She will carry a card in her wallet to explain why she set the alarms off so the TSA doesn't mistake her for a terrorist!

More later...

9:40am ~ October 6, 2008

The cardiac nurse case manager gave us an update on Mariah at 9:40am. Everything is going great. The leads have been placed in the atrium and ventricles of her heart. When the nurse left the OR/cath lab the EP was starting on creating the pocket for the ICD device. It was still undecided whether it would be placed under the muscle or over it. She's tolerating surgery very well and we she might be out of surgery around 11am.

The wi-fi signal is excellent in her room whereas down the hall in the family lounge it is very poor. Once Mariah is feeling a bit better, it will be nice for her to have a good connection so she can check her email, update facebook, etc, if she is up to it.

We are SO grateful to have such an amazing extended family. When we left the family lounge, there were at least 15 people from our family waiting, including my parents, of course. Steve's parents will be here this morning. We are so very thankful for ALL of our family and their support. We are blessed.

More later....

8:24am ~ October 6, 2008

Mariah has just been taken back for surgery. She was very frightened but ready for it to be done and over with. We still aren't sure if her ICD will be over or under the muscle. The pediatric EP will make that decision when he has her in the OR and is able to determine the best placement for it. It's estimated she will be in the OR for 2-3 hours. We are getting ready to head to her room since we should receive an update from the cardiac case manager around 9:30am and they've asked us to wait in her room rather than the waiting room so the doctors and nurses could locate Steve and I easily. She was a bit disappointed to be sharing a room with another patient but seemed okay once she realized I would still be able to stay in the room with her. More later....

7:30am ~ October 6, 2008

~Mariah has given permission and approval for ALL the photos and information posted~
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Mariah with her "Love Bear" she received during the admission process at the hospital.


Mariah and her nurse.

Mariah and her friend, Bobby, before surgery.

Sunday, October 05, 2008

October 5, 2008 ~ 4:30pm arrival

We've arrived at the Ronald McDonald house which means, yes, there was vacancy for us. We are so thankful to have a room because in the 6hrs from when we called to check room availability, attend church, eat lunch at home and take Miranda to my parents' house, they were filled to capacity. Our room is an "Oregon Ducks" themed room with two double beds and a roll away brought in for extra sleeping space. Since our room is decked out with "Oregon Ducks" there are lots of ducks & Oregon Ducks logos around as well as quite a few rubber duckies as decorations that Josiah can play with.

The kids have been enjoying the "teen room" with foosball and airhockey, television, computers and sofas for lounging. The dining room is large, open and has a train on tracks suspended from the ceiling. Josiah loves pushing the button to watch it go chug-a-chug-a-choo-choo!! In one of the family spaces, there is a large screen tv the kids enjoyed watching movies on this evening.

Our dinner at Olive Garden was a nice treat and I think we all over-indulged...but it was oh, so good!

Thursday, October 02, 2008

Sisters

>McKenna< >Mariah<
Friends...
Sisters...
Sweet...
Loving...
Beautiful...
Funny...
Joy...
13 and 17...
Where did the time go?
I love you girls!

How do you write?

Mariah Roberts? ~~ ~~ ~~ in Korean?
Mariah came home from school with this new artwork on her arm ~~ courtesy of Amy, Mariah's friend (a foreign exchange student)